Stronger Together
A toolkit and information resource by patients for patients to help those living with Inflammatory Bowel Disease.
This helpful resource is brought to you by the Patient Advisory Council of ImproveCareNow.
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Toolkits
Materials on this webpage are created by members of the ImproveCareNow Community. Do not rely on the information in these documents or resources to diagnose or treat any health condition. This information does not constitute medical advice and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. All disclaimers found on this page apply to documents on this webpage.
Supporting Each Other
Living with Inflammatory Bowel Disease is hard enough. Doing it alone is even harder. The Patient Advisory Council in partnership with ImproveCareNow has created this resource for young people to be educated and empowered. By sharing ideas, tips, and resources, we become a force of knowledge against IBD. As a voice for IBD patients, PAC members contribute to research studies to improve health care innovations and develop better treatments for all of us.
Let’s rely on each other because we’re stronger together.
Featured Posts
Patient Advisory Council members have been crowdsourcing their wisdom, tips, and tricks about IBD topics that are timely and important to them. Using their insights, they have been developing brief, helpful one-pagers that are then reviewed by various members of the ICN community such as dietitians and psychosocial providers. Take a PAC Moment to check out new patient-developed resources!
The Crohn’s Disease Exclusion Diet (CDED) is a dietary therapy that may be utilized to help manage some forms of Crohn’s disease. In this post ICN Registered Dietitians give an overview of the CDED, when and how it may be used as part of IBD care, how the diet is structured, and what CDED users can expect to eat and drink when following the diet.
Crohn's Disease Exclusion Diet: An Overview
Oct 24, 2024
by Autumn
When I received a MyChart message from my GI, suggesting we consider changing my Crohn's treatment, it hit me like a bullet straight to the gut. I wasn't expecting it. I did not have any symptoms of a flare yet, but labs and scope biopsies said otherwise. I received that message while waiting for an appointment, just one minute before my doctor came out to get me.
Never Say Never - Changing My Crohn's Treatment
Sep 25, 2024
We are excited to be hosting our Fall 2024 Community Conference in Baltimore, Maryland from September 25 to September 27. We look forward to engaging with healthcare providers, patients, parents/caregivers, researchers and improvers from across ImproveCareNow to all teach and all learn, to share and develop new and innovative approaches to improve pediatric IBD care and outcomes, to further our research, and to build our community. Download our draft agenda to check out topics and sessions for this event ⬇⬇
Fall 2024 Community Conference - Together We Can:...
Sep 19, 2024
The American Heart Association recommends 25 to 38 grams of dietary fiber from food sources each day to help achieve a healthful diet pattern1. However, the most recently publicly available National Health and Nutrition Examination Survey (NHANES) data suggests Americans consume an average of 16 grams of fiber daily2.
Not long ago, a low fiber diet was often recommended for patients with Inflammatory Bowel Disease (IBD). It was once thought that consuming foods high in fiber could worsen IBD symptoms such as diarrhea and abdominal pain; for this reason patients were told to avoid high fiber foods. However, recent investigation into the role of fiber in IBD has provided evidence that dietary fiber is beneficial for patients with IBD and should be consumed in adequate amounts.
🍌 What does the evidence say about the role of fiber in IBD?
Fiber and IBD
Aug 15, 2024
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