Stronger Together
A toolkit and information resource by patients for patients to help those living with Inflammatory Bowel Disease.
This helpful resource is brought to you by the Patient Advisory Council of ImproveCareNow.
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Materials on this webpage are created by members of the ImproveCareNow Community. Do not rely on the information in these documents or resources to diagnose or treat any health condition. This information does not constitute medical advice and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. All disclaimers found on this page apply to documents on this webpage.
Supporting Each Other
Living with Inflammatory Bowel Disease is hard enough. Doing it alone is even harder. The Patient Advisory Council in partnership with ImproveCareNow has created this resource for young people to be educated and empowered. By sharing ideas, tips, and resources, we become a force of knowledge against IBD. As a voice for IBD patients, PAC members contribute to research studies to improve health care innovations and develop better treatments for all of us.
Let’s rely on each other because we’re stronger together.
Featured Posts
In our overview post, ICN registered dieticians went over the Crohn's Disease Exclusion Diet (CDED), including when and how it may be used as part of IBD care, how the diet is structured, and what CDED users can expect to eat and drink when following the diet. In this post, we're sharing some common hurdles that patients and families may face, including tips for navigating when kids don't like CDED food or shakes, successfully shifting to a CDED lifestyle, coping with "giving up" favorite foods, what happens if things don't work out, and how to assess whether the CDED or another dietary therapy is right for you/your child.
As a public speaker, it can be challenging to embody positivity while talking about such difficult experiences. Leela struck this balance in her Ignite Talk at our Fall 2024 Community Conference; she led us into the darkest moments of her IBD story and then turned on the light. During her recovery from abdominal surgery, when the stress, fear, and pain was palpable and all she wanted to do was cry but couldn't because "if I did, my stomach would feel like lava," Leela's Mom never gave up on her or left her side. In a pivotal moment involving a 🐞 ladybug, Leela felt her Dad's words "This too shall pass..." spring into her mind. Those comforting words woke her up and she was hit with the realization that this was her defining moment; "a moment in your life that you look back on and it fills you with motivation to keep moving forward - a time in your life where you went...yeah, I did that!”
Be inspired by Leela's #IgniteTalk 🔥
IGNITE - This too shall pass.
Nov 14, 2024
The objectives of this study are to estimate rates and identify factors associated with erythema nodosum (EN) and pyoderma gangrenosum (PG) in pediatric patients with inflammatory bowel disease (IBD).
Patient Advisory Council members have been crowdsourcing their wisdom, tips, and tricks about IBD topics that are timely and important to them. Using their insights, they have been developing brief, helpful one-pagers that are then reviewed by various members of the ICN community such as dietitians and psychosocial providers. Take a PAC Moment to check out new patient-developed resources!
The Crohn’s Disease Exclusion Diet (CDED) is a dietary therapy that may be utilized to help manage some forms of Crohn’s disease. In this post ICN Registered Dietitians give an overview of the CDED, when and how it may be used as part of IBD care, how the diet is structured, and what CDED users can expect to eat and drink when following the diet.
Crohn's Disease Exclusion Diet: An Overview
Oct 24, 2024
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