Stronger Together
A toolkit and information resource by patients for patients to help those living with Inflammatory Bowel Disease.
This helpful resource is brought to you by the Patient Advisory Council of ImproveCareNow.
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Toolkits
Materials on this webpage are created by members of the ImproveCareNow Community. Do not rely on the information in these documents or resources to diagnose or treat any health condition. This information does not constitute medical advice and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. All disclaimers found on this page apply to documents on this webpage.
Supporting Each Other
Living with Inflammatory Bowel Disease is hard enough. Doing it alone is even harder. The Patient Advisory Council in partnership with ImproveCareNow has created this resource for young people to be educated and empowered. By sharing ideas, tips, and resources, we become a force of knowledge against IBD. As a voice for IBD patients, PAC members contribute to research studies to improve health care innovations and develop better treatments for all of us.
Let’s rely on each other because we’re stronger together.
Featured Posts
We are excited to welcome back former PAC co-chair, Dr. Jennie David (now a licensed pediatric IBD psychologist) as a host for this episode of imPACt. During episode 32 we talk about whole person care in IBD and get to ask a psychologist, social worker, and medical provider (nurse practitioner) how they came to work in pediatric IBD and how they learned about the mental health components of IBD.
What if your closest friend had a habit of interrupting your plans and not listening when you begged them to stop? You might might wish to end that friendship. But, as Mahalakshmi points out in her #IgniteTalk, which she shared at both our in-person and our virtual community conference this fall, when "friend" is really a metaphor for IBD there isn't really a choice.
Be inspired by Mahalakshmi's #IgniteTalk 🔥
IGNITE - My friend...IBD
Dec 02, 2022
Inspiring, honest and motivational. Those were the words used to describe IBD parent, Ildiko's #IgniteTalk. In it she reminded us all of the critically important and unique perspective that parents and caregivers of young people with IBD bring to the discussion. She asked us to remember that while we collaborate on the big challenges that IBD presents, there are also small things we can do to make a difference right now (like watching our language). And she issued a call to action for us to work together to make truly meaningful progress in outcomes for kids with IBD and also to really believe that radical, transformative progress is possible.
Be inspired by Ildiko's #IgniteTalk 🔥
IGNITE - IBD is a marathon AND a...
Nov 17, 2022
David Suskind, MD is an IBD clinician and researcher, as well as physician leader of ImproveCareNow at Seattle Children's Hospital. At our Fall 2022 Community Conference, Dr. Suskind shared the Professor NiMBAL comic, which presents important information about Crohn's disease and ulcerative colitis in a way that is easy to digest and feels less scary. Read more about how the comic came to be as Dr. Suskind answers our Challenge, Choice, Outcome interview questions.
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