Stronger Together
A toolkit and information resource by patients for patients to help those living with Inflammatory Bowel Disease.
This helpful resource is brought to you by the Patient Advisory Council of ImproveCareNow.
Get the information you need.
Get the information you need.
Your personal resources here.
Health Literacy Toolkit
Education on IBD related health topics, including medications, common tests, and a glossary of common IBD terms.
Lifestyle Toolkit
An interactive webpage about IBD and social life, coping with treatment, mental health, and more.
Nutrition and IBD Toolkit
Nutrition tips and ideas + working with an expert as part of treatment and management.
Travel Toolkit
Stories and helpful techniques for travelers with Crohn’s disease and Ulcerative Colitis.
Disordered Eating Toolkit
Get expert advice about disordered eating behavior in IBD patients and ways to help.
College and IBD Toolkit
Helpful resources to make the process of transitioning to college with IBD less stressful.
Accommodations Toolkit
Available accommodations for IBD patients to make life easier and less stressful.
More resources for you
Toolkits
Lifestyle Toolkit
An interactive webpage about IBD and social life, coping with treatment, mental health, and more.
Health Literacy Toolkit
Education on IBD related health topics, including medications, common tests, and a glossary of common IBD terms.
Crohn’s and Colitis Storybook
Helpful perspectives, self-care, and education from others living with IBD.
Accommodations Toolkit
Available accommodations for IBD patients to make life easier and less stressful.
College and IBD Toolkit
Helpful resources to make the process of transitioning to college with IBD less stressful.
Disordered Eating Toolkit
Get expert advice about disordered eating behavior in IBD patients and ways to help.
Materials on this webpage are created by members of the ImproveCareNow Community. Do not rely on the information in these documents or resources to diagnose or treat any health condition. This information does not constitute medical advice and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. All disclaimers found on this page apply to documents on this webpage.
Supporting Each Other
Living with Inflammatory Bowel Disease is hard enough. Doing it alone is even harder. The Patient Advisory Council in partnership with ImproveCareNow has created this resource for young people to be educated and empowered. By sharing ideas, tips, and resources, we become a force of knowledge against IBD. As a voice for IBD patients, PAC members contribute to research studies to improve health care innovations and develop better treatments for all of us.
Let’s rely on each other because we’re stronger together.
Featured Posts
Hi, my name is Emily and I was diagnosed with Crohn’s disease in December of 2023. Something interesting about me is that I met my idol, the voice actor of Ahsoka Tano from Star Wars, Ashley Eckstein. I joined the PAC in February 2024.
Crohn’s and anxiety - it’s an endless battle.
Feb 22, 2024
My name is Maddie and I was diagnosed with Crohn’s Disease when I was 13 years old. I’ve been a part of the ICN network for almost 8 years, and I transitioned from my role as PAC Co-Chair a year ago. Now I have the opportunity to share my passion project with the ICN community! Introducing: EATS for IBD™
ImproveCareNow (ICN) believes that when patients and caregivers are true partners in the design and delivery of their IBD care, we can achieve even better outcomes. One way our learning health network fosters this commitment to partnering with our pediatric IBD families is through our Community Conference scholarship program. Scholarships allow patients and/or caregivers to attend our in-person meetings at no cost to them.
Partnering for better pediatric IBD outcomes
Jan 25, 2024
Some people enjoy the tradition of setting a New Year’s resolution. While adding healthy, balanced snacks into your diet sounds like a good goal for most of us, these small meals can help young people with IBD meet their nutritional needs. If solid food is currently part of your/your child's eating plan this list of snack and smoothie recipes, and dietary exceptions may be useful to you.
Snack Ideas for Children and Teens with IBD
Jan 11, 2024
Kera has been seeking information and making tough decisions from a young age. She was just 10 years old when she, with support from her Mom and Dad, made the choice to use nutritional therapy to treat and manage Crohn's disease after surgery. Her path to emergent surgery, and ultimately her diagnosis, was long and paved with painful symptoms and emotional trauma. Some adults dismissed her pain as "normal" or even lies. In her deeply honest #ignitetalk, Kera reminded us that life is full of inflection points...the moment a stomach bug morphed into chronic pain, the moment her pain was validated and she learned she had Crohn's, the moment her care providers really listened and answered her questions, the moment she realized that succeeding at nutritional therapy helped her physical health but exacted a huge toll on her mental health, the moment it became clear her issues with body image and eating were not safe or healthy, the moment she discovered the Patient Advisory Council and people who she didn't have to 'downplay her trauma around', the moment (which came just before she took the podium at #ICNCC23F) when her PAC co-chair, Shira, told her that she is allowed to take up space.
If reading about or listening to real experiences with eating disorders and/or body dysmorphia does not serve you, please protect your own mental well-being by skipping this post and video.
Be inspired by Kera's #IgniteTalk 🔥
IGNITE - The impact and importance of listening
Jan 08, 2024
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